Address:
Hartsyzsk, Ukraine
What happened:
Duchenne progressive muscular dystrophy with myogenic tetraparesis
It is necessary to collect:
$2,500 every month
(
Already collected:
$6100)
Expense report
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From letter:
“Thank you very much and may God keep you!” says Olga Bachisheva, 6-year old Danil’s mother, speaking to all those people whose support makes it possible for him to get the treatment necessary for him to survive. Danil is the only child in the family; he is a good and quiet boy. He was a healthy boy and liked going to kindergarten. All the teachers and the children loved him for his kind and sensitive heart. Like many other boys, Danil dreamed of becoming a professional athlete.
Tragedy struck the family two years ago, on May 21, 2006, when Danil and his father were in a serious car accident. The boy, who was seriously injured, was transported by air ambulance to the neurosurgery department of the Donetsk Regional Rehabilitation Scientific Practical Center with an epidural hematoma. Danil had surgery and it was successful. His parents did not even imagine that this trial would only be the beginning of the most difficult period in the life of their family.
“We thought that the worst was behind us,” writes Danil’s mother, “but a month later, at a follow up examination, doctors discovered that our son had a terrible disease that was not connected to the accident. Progressive muscular dystrophy is a hereditary disease that manifests itself in gradual muscle atrophy and degeneration. There is no cure for this disease. Proper treatment only helps to slow down its development a little. The most terrible thing about it is that the muscular weakness progresses with time. A child becomes wheelchair-bound before he turns 12 years of age! Patients with Duchenne muscular dystrophy usually die at the age of 20–25 because of heart and diaphragm dysfunction…”
Though Danil has very little chance of a complete recovery, doctors encourage his parents, since modern science is developing rapidly and perhaps a treatment that will extend the life of such patients will soon be invented.
“That means we have to live and hope, to go through treatments and wait for the new medication,” writes Olga. “We do not have much time left; each day is precious when you have such disease. At the rehabilitation center where my son gets supportive treatment they prescribed immunoglobulin courses for him; fifteen 50 ml ampules of medicine every other month. We need 90 ampules per year and each ampule costs $131. That means we have to spend $11,790 a year on immunoglobulin alone, but that is impossible for us, our salaries are simply not enough to help our baby survive. Moreover, apart from the immunoglobulin, the boy needs other expensive medication!”
How You Can help
As our Ukrainian partners report, the Bachishev family is experiencing serious financial problems. Danil’s father is a railway employee and his salary is $600. Danil’s mother cannot work, though she has two university degrees, because Danil needs constant care. The boy must undergo treatment courses at the rehabilitation center every 2–3 months. When at home, Danil has to receive massage three times a day, get injections, and strictly follow a schedule for taking his medication.
Since the boy cannot attend kindergarten, his mother teaches him at home. So that their son would be able to communicate with his peers, Danil’s parents signed up the boy for English lessons. Danil is not able to walk very well on his own, so his mother has to drive him …
A year ago Danil’s parents turned to the people of the city through a local newspaper and asked for help. Many people responded, and Rinat Akhmetov, a Verkhovna Rada Deputy of Ukraine, purchased immunoglobulin at a cost of $2,100 for Danil.
“We are extremely grateful to all the kind people!” said Danil’s parents, expressing their appreciation, “but, unfortunately, a single donation of assistance is not enough, our child needs lifelong treatment … We are so grateful to your fund for providing continual assistance!”
What is already done:
For Daniel Bachisheva we'll credit $ 300 - $ 2500 every three to four months. But the boy's health still depends on your donations.
"Thank you very much! We are thankful for your fund for the continued support! May God bless you "- these words of Olga Bachishevoy, mother of 6 years Danila, addressed to all people, through which a baby is undergoing treatment and the only reason continues to live.
His life to save the day by day. He needs your support!
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